Mission

Through practice, education, and research in genetic nursing,

we seek to clarify the role of the nursing profession in genetic medicine,

and to expand and increase quality of genetic nursing.

About JSGN

The Japanese Society of Genetic Nursing aims to expand the practice of genetic nursing, raise awareness through education, promote research, and contribute to the society.

As well as organizing academic conferences, organizing and managing open educational programs, and promoting the exchange of information among our society members using the mailing list, we also engage in the policy-making regarding genetic medicine.

The Society emphasizes activities to learn, think and walk together with citizens toward a society that is accessible to all people.

Activities

Organization of academic conferences

Publication of academic journals

Promotion of research activities

Organization of educational seminars on genetic nursing

Cooperation and collaboration with related academic organizations in Japan and international societies

Publishing newsletters

Recommendations for policies on genetic medicine

Greeting from President

 In 1999, “Society for the Study of Genetic Nursing” and then “Genetic Nursing Committee in Japan” were established as the former society of the JSGN. In that era, the human genome project was on-going, then most part of our interests were in research activities but limited in clinical nursing. During the 20 years that the JSGN have walked, various efforts have been made to implement genetic/genomic healthcare. We have lively discussed the roles of nurses, as well as ethical, legal and social issues in the genetic/genomic healthcare.

 2019 was the milestone year for us, the first Genetic CNS was born, and we had the GCNS Memorial Conference. We reviewed the history of genetic nursing and the path leading up to the birth of GCNS, as well as discussing current activities and future prospects and challenges of GCNS.

I am honored to be appointed as the 5th president of JSGN at such an important period. JSGN has a strong foundation to tackle various issues related to genetic/genomic nursing, thanks to the efforts of past presidents, councils, and members.

Under the leadership of former President Dr. Nakagomi, the JSGN has promoted exchanges, cooperation, and integration with academic societies in the field of genetics and nursing, and support groups. Then various research and education projects have been engaged in collaboration with them. The JSGN keep working to improve genetic nursing research and the clinical competence of nurses.  We would like to steadily carry on these efforts and activities.

   The JSGN will continue to make effort to further enhance and progress of the JSGN with our members. We will continue to communicate our advocacy as nursing in the stream of genetic/genomic healthcare. We sincerely appreciate the further cooperation of our members.

JSGN President, Yuko Takeda

Background

Research through the Human Genome Project has rapidly developed from basic research areas, such as genetic diagnosis and the development of methods for testing and treating genetic diseases, to clinical areas and then to the field of preventive medicine.

It has been mentioned that the 21st century is the era of genetic medicine, but it has been pointed out that genetic medicine is largely related to the succession of generations and involves complex issues such as human rights and privacy protection. In the USA, a system has already been established whereby professionals such as nurses and genetic counsellors support clients and their families from their point of view.

However, in Japan, these technologies are likely to penetrate the medical field without the establishment of a genetic medical system, and in order to consider how the nursing profession should be involved in “genetics” in such genetic medicine, clinical and educational nurses established the “Society for the Study of Genetic Nursing” in February 1999. The group studied the relationship between genetics and nursing through case studies, recognized the current position of the nursing profession’s relationship with genetics, and discussed the role that nurses should play in future genetic medicine. In the process, a consistent view was reached that higher quality genetic nursing care for clients was needed, and the Genetic Nursing Committee in Japan was established in August 1999, followed by the establishment of the Japanese Society of Genetic Nursing in September 2005.

Committees

Board of Directors

President: TAKEDA Yuko

Vice President: KUKINAKA Chieko

Directors: AOKI Mikiko, SUSAKA Hiroko, NOMAGUCHI Chikaho, NISHIGAKI Masakazu, OKAWA Megumi, NAKAGOMI Satoko, SASAKI Noriko

Auditors: ARIMORI Naoko, OZASA Yuka

Education Committee

Activities: Activities will be carried out to enhance genetic nursing education in basic nursing education.

Executive Director: KUKINAKA Chieko

Chairperson: SUZUKI Chieko

Committee members: SASAKI Noriko, OZASA Yuka, WATANABE Atsushi, OBAMA Kyoko, SHIN Ujon

Promotional Committee

Activities:  Use the internet (homepage and mailing list) to provide information and exchange with members, as well as to promote genetic nursing and the Society to the public.

Executive Director: SUSAKA Hiroko

Chairperson: MORIYA Hiromi

Committee members: SEKIYA Tomoko, FUKANO Chika, NOTOMI Rie, NOMASA Kayo

Journal Editorial Committee

Activities: Improving genetic nursing practice and research through editing and publishing the Journal of the Japanese Society of Genetic Nursing.

Executive Director: NOMAGUCHI Chikaho

Chairperson: TSUJI Keiko

Committee members: ARAKI Nao, OKANAGA Mayumi, MURAKAMI Kyoko, YANO Tomomi

Genetic Nursing Practice Promotion Committee

Activities: Spreading awareness of genetic nursing in clinical practice and increasing the competence of genetic nursing practice.

Executive Director: OKAWA Megumi

Chairperson: KAMOGAWA Nanae

Committee members: OGA Yukako, KIRIHARA Saori, NAKAMURA Yui, MIYATA Mikako, TSUSHIMA Satoko

International Exchange Committee

Activities: Identify international trends in genetic nursing and promote exchanges with genetic nursing practitioners and researchers in other countries.

Executive Director: NISHIGAKI Masagazu

Chairperson: MURAKAMI Kyoko

Committee members: KUTSUNUGI Saeko, SHUNTO Nozomi

Future Vision Committee

Activities: Based on the new value of health and genetic/genomic healthcare at domestic and worldwide, the committee will discuss the philosophy and projects of the JSGN related to: utilization of the GCNS, future direction of professional and fundamental nursing education, and formulate a framework for future plans.

Executive Director: NAKAGOMI Satoko

Chairperson: MITARAI Sachiko

Committee members: KITAMURA Chiaki, TAKEUCHI Chisen, TAMAOKI Tomoko, TSUBOTA Akiko, NOMASA Kayo, MITOGAWA Mayumi, MORIFUJI Kanako, YAMASHITA Hiromi

External Committee

Activities:

Conducts external activities as required, while keeping in view general trends in society, with a focus on genetic medicine and overall nursing clinical and educational aspects.

Executive Director in charge: AOKI Mikiko

Committee members: TAKEDA Yuko, KUKINAKA Chieko, SASAKI Noriko, NOMAGUCHI Chikaho

Treasurer and membership management

Executive Director : AOKI Mikiko

General affairs

Executive Director: SASAKI Noriko

About Clinical Nurse Specialist in Genetic Nursing

Japan Nursing Association certified Clinical Nurse Specialist in Genetic Nursing(CNS-GN) since 2017. CNS-GN are trained and working to achieve following purposes:(1) Identify the genetic issues of subjects and provide decision-making support related to diagnosis, prevention, and treatment, as well as lifelong nursing care to improve their quality of life, (2) establish a system that enables patients to receive necessary medical treatment and care across generations, and (3) Contribute to the development of genomic medicine.
CNS-GNs provide higher quality nursing care by utilizing their outstanding skills and knowledge in clinical setting. In education, CNS-GN are working to promote and educate clinical nursing professionals working in clinical practice and nursing students about genetic nursing. Furthermore, CNS-GN are continuously pursuing the desirable role of CNS-GN for the public through various activities with citizens and daily patient care.